ugg blue boots This Morning’s Holly Willoughby and Phillip Schofield in tears during Charlie Gard phone

ugg clothing This Morning’s Holly Willoughby and Phillip Schofield in tears during Charlie Gard phone

The parents of 10 month old Charlie, who suffers from a rare genetic condition and has brain damage, are now fighting to give their son the same life changing treatment in the US.

On Thursday his devastated parents, Connie Yates and Chris Gard, lost a legal battle when the European Court of Human Rights ruled his life support could be switched off.

One caller revealed her tragic personal experience, where she was never given the choice to decide what treatment her son received before his death.

Father of ‘happy boy’ treated for similar condition to Charlie Gard says he ‘deserves to live’

Continuing the harrowing story, she said: “When he finally had his cardiac arrest and he died. They put a tube down thinking at least his mum can come in now and wash him and do all the things mums do.

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“But I never had that chance. We walked up to the bed of a child who I could see had no blood pressure no nothing. He was dead with a tube in his face and I was supposed to say goodbye to him.

“At no point were we given a choice. We were not given the choice to have him incubated or not have him excubated.

“Our little boy died the most horrendous, undignified death I have ever seen in my life and I have to live with that every day now.

“I wasn’t given a chance, I wasn’t given a choice.”

Father of ‘happy boy’ treated for similar condition to Charlie Gard says he ‘deserves to live’

The father of a “happy boy” successfully treated for a similar condition to Charlie Gard has said he “deserves the opportunity to live”.

Art Estopinan was told his son would only have two months to live but four years after being brought home he is getting stronger and can now move his hands and feet.

Charlie Gard’s heartbroken mum breaks down on This Morning as she insists her baby boy isn’t suffering

(Image: ITV)

The couple had hoped to take Charlie to America for pioneering treatment,
ugg blue boots This Morning's Holly Willoughby and Phillip Schofield in tears during Charlie Gard phone
while US President Donald Trump has added his support to help the youngster.

Art said he put Charlie’s parents in contact with the Columbia University Medical Centre in New York where he “found hope” for his son Arturito.

“Our son was told he would only have two months to live. This is a very rare genetic muscular disorder and with all due respect to all of the great doctors at Great Ormond Street Hospital this disease isn’t well known amongst these doctors,” said Art speaking on Good Morning Britain.

“We were told to go home, he’s going to die, there’s nothing you can do, don’t even look at the internet. I looked the doctor in the eye and said thanks for the diagnosis but we won’t go home to take him to die.”

Donald Trump vows to help tragic Charlie Gard as parents spend final days with baby son

(Image: ITV)

Arturito was born in 2011 with a variant of the same disease as Charlie but Dr Hilary Jones made it clear that the British boy’s type is “far rarer” and the two can’t be compared.

Dr Hilary said: “The risk is you compare two different types of disaease. Charlie’s starting point was far worse than Art’s son was.”

However, Art disagreed with his opinion and claimed the two boys are “first cousins” in terms of their diagnosis.

Art added: “My son has been on a ventilator for 5 years. He’s getting stronger. When he got home four years ago he couldn’t move anything, only his eyes. Now he can move is hands, feet and fingers, he’s a happy boy.
ugg blue boots This Morning's Holly Willoughby and Phillip Schofield in tears during Charlie Gard phone